What
is Autism?
Autism is a developmental disability that affects,
often severely, a person's ability to communicate and socially interact
with others. It is four times more prevalent in males than females.
Currently, autism is believed to affect 1 in every 166 people. The
rate of people being diagnosed with autism has increased substantially
over the past two decades. Although this may be in part due to improved
diagnostic techniques and to changes in the criteria for autism spectrum
disorders (see below), the majority of experts agree these changes
are not enough to explain the epidemic rates at which autism is being
diagnosed.
Autism Spectrum Disorders is an umbrella term that includes classic
autism (also known as Kanner's autism or Kanner's syndrome), Asperger's
syndrome, and pervasive developmental disorder (PDD). Autism is considered
a spectrum disorder because the number and intensity of the symptoms
people with autism display may vary widely. However, all people with
autism demonstrate impairments in the following three areas: communication,
social relationships and restricted patterns of behavior.
The spectrum ranges from those who are severely affected, less able,
and dependent on others to those who are of above-average intelligence
and independent, yet lacking in social skills.
Understanding
Autism
Autism is a baffling disorder. Its symptoms are present for some
children from infancy, while other children seem to develop normally
for their first year or so and then begin to slip away, into a private
world where social norms do not exist. To make matters worse, although
more and more individuals are being diagnosed with one form of autism
or another, the cause of this disorder is still unknown.
For many years it was thought there were no effective treatments
for helping people with autism. Recently a family was instructed
by the physician who diagnosed their son to go home and hold each
other, because there was nothing else they could do. Fortunately,
the family refused to remain mired in such hopelessness. Instead,
they turned their quest to help their son into one which has helped
and continues to help other children with autism.
In addition to searching for more effective treatments for autism,
we have made it part of our mission to help people with autism live
as fulfilling and independent a life as possible, and to educate
the public about autism and related disorders. We hope from this
website you will gain the information you need to help your loved
one with autism, and we encourage you to pass on our link to your
friends and family. We also hope you will help to support our efforts
and to become an active participant in our cause.
Diagnosing Autism
Currently, there is no single medical test that will definitively
diagnose autism. Instead, the diagnosis is made on the basis of
observable characteristics of the individual.
Because most children start showing symptoms of autism at about
18-24 months, British researchers have developed a screening tool
called the Checklist for Autism in Toddlers (CHAT - please click
here for more information). The CHAT (which takes five minutes to
administer) has been shown to be highly effective in predicting
which children will develop autism, PDD, Asperger's or other developmental
syndromes.
Before embarking on any sort of diagnosis, however, it is important
to rule out possible physical causes for an individual's behavior.
Please consult your physician or pediatrician if you have concerns
about a family member or friend.
Treating Autism
There is no single "cure" for autism, and no one treatment
that works for every child. Some treatments and therapies used to
help individuals with autism have research proving their efficacy,
others do not. Some treatments are specific to individuals exhibiting
very specific characteristics. What works for one child may not
work for another.
It is therefore important that parents and professionals investigate
the claims of the various treatments they see offered, and that
they evaluate the potential risk or value to the person who has
autism.
Living With Autism
Living with a child who has autism often means readjusting our expectations
of our family, both in terms of the normal, day-to-day and of special
events and occasions.
Sometimes, families with a child with an ASD find themselves isolated
from others, either because the parents are overwhelmed and too
tired to do anything, or because they are worried or embarrassed
by what their child may potentially do (or not do) in a social situation.
Parents or other caregivers may find themselves becoming depressed,
or withdrawing from civic, religious or recreational activities
they once enjoyed.
Teaching your child basic social and communication skills and finding
support to get challenging behaviors under control will make life
easier for everyone in your family. If you child is non-verbal,
teach him or her a visual communications system such as PECS. Your
child will be less frustrated and gain confidence, knowing their
needs are being understood. Visual schedules are helpful for letting
a child know what will happen next. You may also want to consider
getting your child to participate in family life by giving them
simple chores (sorting silverware often appeals to children with
autism). With a few alterations and solid supports in place, you
can begin to build a new kind of family life.
Autism and Education
Over the course of the past two decades, many effective strategies
have been developed to teach children and teenagers who have been
diagnosed with autism. However, not everyone involved in education
(or even special education) is knowledgeable about all these methods.
Few teachers work in an autism-specific classroom; most are responsible
for classes where a variety of disabilities is represented. Today's
overworked and stressed teachers may not have the time or the resources
to implement an effective program for every child. Thus, it is important
for parents to develop a sense of their child's learning style,
and to educate themselves about what strategies will best help their
child to succeed in school.
As more and more children are diagnosed with autism and related
disorders, school districts are becoming aware of the need to provide
necessary support to teachers and students. If you find your school
district is not responsive, you may want to organize with other
parents to see that your children's needs are met. While our organization
does not do family- or school-specific advocacy, we can be helpful
in discovering the most effective channels of communication within
your school district.
Please see our Education Section to
find a school district near you that meets
the needs of children with autism.
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